Request Account

Please fill in the form below to request a LORIS account.

Once your researcher/physician status has been verified by the PREVENT-AD team, access will be granted, on average, within a week.

Let us know which data you are interested in and for which type of work.

Data of Interest

Expected Uses

Is your work related to Alzheimer's Disease?

Agreements

Publications

For all abstracts and manuscripts published using data from PREVENT-AD, I agree to the following:

Authorship: On the by-line of the abstract or manuscript, after the named authors, I will include the phrase "The PREVENT-AD Research Group".

A listing of the PREVENT-AD Research Group's investigators, authors' list, can be accessed through the PREVENT-AD systems using the following link: https://preventad.loris.ca/acknowledgements/acknowledgements.php?Stage=2&authors

Methods: I will add, in the methods' section, the following sentence:

"Data used in preparation of this article were obtained from the PRe-symptomatic EValuation of Experimental or Novel Treatments for Alzheimer’s Disease (PREVENT-AD) Registered repository available at https://registeredpreventad.loris.ca"

This sentence, if applicable, can also be added:

"The investigators of the PREVENT-AD program contributed to the design and implementation of PREVENT-AD and/or provided data but did not participate in data analysis or writing of this report."

Reference Papers Linked To PREVENT-AD: "I will cite at least one of the following reference papers."

Stage 2.0: PREVENT-AD Stage 2 open data release: neuroimaging, behavioral and follow-up cognitive data in older adults at risk of Alzheimer's disease, Pichet-Binette et al, 2024 - preprint

Stage 1.0: Open science datasets from PREVENT-AD, a longitudinal cohort of pre-symptomatic Alzheimer's disease, Tremblay-Mercier et al., 2021.

Conceptual paper: Rationale and Structure for a new Center for Studies on Prevention of Alzheimer’s Disease (StoP-AD) Breitner, et al 2016

Commercialization

"I will not attempt to sell or claim intellectual property rights in the PREVENT-AD dataset."

Privacy

"I will not attempt to re-identify or re-contact individual participants. In particular, I will not link the data to other datasets if that could lead to their re-identification."

Ethical Oversight

"I will obtain any required approvals for the use of the PREVENT-AD dataset."

Use Restriction

"This open PREVENT-AD dataset must be used for ‘neurosciences research’ as stipulated in the consent form."

Confidentiality

"Sharing of this dataset must be done through this portal. Do not redistribute the data yourself. Redirect potential users to this portal so they can register and agree to these terms."

Monitoring

"I will respond to requests from PREVENT-AD, if any. I will immediately report to PREVENT-AD activity that breaches these terms."
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